What Does Awareness Really Mean in Relation to Down Syndrome?

Understanding Down Syndrome, the effect is has on those with the disorder, and the families it impacts, is something few can attest to.

Society may only see a child with specific features, such as a flattened nose, smaller ears and eyes, and the probability of some degree of mental retardation. But, the disorder has more than just a few visual characteristics that set it apart from other disabilities.

Creating an awareness of Down syndrome as a whole disorder and how it affects not only the individual with it, but those that love and care for them is important. But, what is awareness? What does it mean in relation to this disability?

Merriam-Webster dictionary defines the word aware as: "vigilance in observing or alertness in drawing inferences from what one experiences." Explained: watch to avoid the danger of passing statements or judgments as true from the experiences of others. Simply put: Just because one child with Down syndrome moves into adulthood with minimal complications, does not mean that all will do so.

Nearly 50% of children with Down syndrome have heart defects such as atrial septal or ventricular septal. Both increase the risk of early death. (See healthline.com for article) And many will require surgery in early infancy according to the Mayo Clinic.

Nearly 2% of Down syndrome children will be diagnosed with Acute Lymphocytic Leukemia (ALL), which affects the lymphoid white blood cells, or, Acute Non-lymphocytic Leukemia (ANLL), a fast moving cancer that affects the myeloid white blood cells. The children with ALL have responded better to treatment, however, the cure can be as deadly as the disease.

This disorder increases the susceptibility to infections as well. Ear infections and pneumonia risks are greater. Intestinal problems and/or abnormalities, hearing and/or vision impairments or loss are also not uncommon.)
Awareness means that each child, and their family, faces battles daily. Some are easier to overcome than others. Some cannot be overcome at all.

With this knowledge, those in positions to be of service to the family, give consolation, or just offer shoulders of support can bring the awareness of hope to those that need it most.
Jaime Baxter, 2008

Article Source: http://EzineArticles.com/?expert=Jaime_Connor

2 comments:

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